Portal of Medical Data Models
The Portal of Medical Data Models (MDM-Portal, https://medical-data-models.org) is a metadata registry for creating, analyzing, sharing and reusing medical forms, developed by the Institute of Medical Informatics, University of Münster in Germany.
Electronic forms for documentation of patient data are an integral part within the workflow of physicians. A huge amount of data is collected either through routine documentation forms for electronic health records (EHRs) or as case report forms (CRFs) for clinical trials. However, different health information systems are not necessarily compatible with each other and thus information exchange of structured data is hampered. Software vendors provide a variety of individual documentation forms, which function as isolated applications. Furthermore, the vast majority of those forms is not available to the scientific community. Based on this lack of transparency harmonization of data models in health care is extremely cumbersome, thus work and know-how of completed clinical trials and routine documentation in hospitals are hard to be re-used.
The MDM-Portal serves as an infrastructure for academic medical research to contribute a solution to this problem. It already contains more than 13,000 system-independent forms with more than 1,5 million annotated terms. Among those, numerous core data sets, common data elements or data standards, code lists and value sets are provided, which can be exported in ~20 formats (e.g. ODM, FHIR, REDCap, OpenClinica, Excel, SPSS).